Sisters speak out about Fragile X

Three sisters, Donna, Angela and Bronie, are carriers of Fragile X. Between them they have eight children – five of them have been diagnosed with the genetic condition.

The sisters didn’t know they were carriers of the condition until Donna’s son, Flynn was diagnosed when he was seven years old.

In a recent episode of Attitude on TVNZ 1 the sisters gave a glimpse of what family life can be like living with Fragile X. 

Fragile X New Zealand worked with the production team at Attitude for over a year and My Perfect Family: Fragile X screened in May.

The episode features a No Longer Fragile workshop. IHC Foundation has funded FXNZ to conduct the workshops and parent education programmes in the community. 

Fragile X syndrome is the leading cause of inherited intellectual disability and the most common genetic cause of autism.